Advice and support for parents and carers of children with SEND

There are lots of local and national organisations that can provide information, advice and support for children and young people with special educational needs and disabilities and their families.

Early Help

If you are experiencing any type of difficulties within your family, there is a range of support available. We want to make sure that you and your family get the right help at the right time.

Our Early Help offer includes our confidential service, the Children's Help and Advice Team (CHAT). They can offer support, advice and guidance for families and young people on a range of issues including behaviour that challenges, child wellbeing and development, children and young people with special educational needs and disabilities (SEND) and more.

You can also access support via our parenting courses and, when appropriate, we can work with you to provide tailored one-to-one support from our Early Help Family Support service.

Find out more about our Early Help offer for families.

SEN Team

Herefordshire Council's SEN Team can answer questions and provide support when your child is going through a statutory assessment or already has an Education, Health and Care Plan (EHCP).

Depending on the nature of your query, please contact either the Assessment Team, Review Team or Assistants Team. All their contact details are at the bottom of the page.

SENDIASS

Herefordshire and Worcestershire Special Educational Needs Disabilities (SEND) Information Advice and Support Service (SENDIASS) provides impartial information, advice and support on all matters relating to children and young people with SEND.

This service is free, accessible and confidential and provided at 'arm's length' from Herefordshire Council.

SENDIASS aims to represent the views of parents, carers, children and young people to feedback to the council to help shape local policy and practice.

Parent Carer Voice Herefordshire (PCVH)

Parent Carer Voice Herefordshire (PCVH) is the local parent carer forum which promotes the participation of parent carers in the planning and delivery of services for children and young people (0-25 years) with SEND in Herefordshire.

PCVH offers an opportunity for families of children and young people with SEND to come together, to share information and to provide support to each other, while helping to create services that meet the needs of their families.

SEND Local Offer Facebook page

Herefordshire Council's SEND Local Offer Facebook page regularly posts information about local activities, groups and support services for children and young people with SEND and their families.

Neighbouring local offers

You may find it useful to take a look at the SEND local offers for our neighbouring counties to find out what is available for children and young people with SEND, especially if you live near the border:

Local support organisations

21 Plus is a charity that educates, empowers, and supports children and young people with Down's syndrome and their families. They provide a range of groups and services and are able to support families on or near the border of Herefordshire/Wales (up to Hereford). You can find out more about the charity on their Facebook page.

Aspire support people with learning disabilities to live the life they choose.

Autism West Midlands are the leading charity in the West Midlands for people on the autism spectrum. They use their expertise to enrich the lives of autistic people and those who love and care for them. Staff and volunteers work across all age groups and abilities, providing direct support.

Autism Central Hub offer guidance to families, carers and personal assistants of autistic people, including groups and one-to-one sessions. They are commissioned by NHS England and in the Midlands, the charities Contact and Ambitious about Autism run Autism Central's programmes.

Citizens Advice Herefordshire aim to provide the advice people need for the problems they face and improve the policies and practices that affect people's lives. They provide free, independent, confidential and impartial advice to everyone on their rights and responsibilities.

Crossroads Together provide practical support for unpaid carers who look after someone with a disability, illness, mental health problem or an addiction.

ECHO offer community-based leisure and social activities, volunteering, work experience and training for adults with learning disabilities.

Hereford and Worcester Dyslexia Association has resources for parents along with offering workshops, support and advice.

Herefordshire Disability United is run by and for people with disabilities and provide a voice for those with a disability on local and national issues.

Look is a small local charity which connects and supports visually impaired children, young people and their families.

Marches Family Network offer support, respite and social opportunities for disabled children and advice, assistance and friendship for their families.

National Autistic Society Herefordshire offer a range of support and activities for autistic people of all ages and their families.

National support

ADHD Foundation is a leading UK neurodiversity charity, offering a strength-based, lifespan service for the one in five of us who live with ADHD, autism, dyslexia, DCD, dyscalculia, OCD, Tourette's Syndrome and more.

The UK ADHD Partnership UKAP aim to support clinicians and allied professionals to identify and meet the needs of children and young people affected by this disorder.

Ambitious about Autism is a national charity that stands with autistic children and young people, champions their rights​ and creates opportunities. They also deliver training and consultancy to a wide range of organisations to improve awareness and understanding of autism.

Autistica is a charity which funds and campaigns for research to understand the causes of autism, improve diagnosis, and develop evidence-based tools, resources and information.

Caudwell Children offer practical and emotional support, services, equipment, therapies and treatments for children with disabilities.

Cerebra provide advice and support for families of children aged 0 to 16 years old with brain conditions.

Changing Places provide a nationwide map to help you find toilets which have more space and the right equipment, such as a height adjustable changing bench or hoist, if you can't use a standard accessible toilet.

Child Autism UK is a charity which aims to help children with autism achieve their potential. They provide services to enable children to overcome difficulties with communication, learning and life skills and give families the techniques and strategies to cope with autism through the use of Applied Behaviour Analysis (ABA).

Contact offer information, advice and support for families with disabled children, including a free helpline and online community.

Council for Disabled Children is the umbrella body for the disabled children's sector, bringing together professionals, practitioners and policy makers. They provide useful information and resources for both families and professionals.

Disability Grants can help you find local and national funding, which can be used to purchase disability equipment, home adaptations or holidays.

Down's Syndrome Association provide information and advice for people with Down's Syndrome, their families and carers, to help support a full and rewarding life.

Dyscalculia and Dyslexia - British Dyslexia Association The British Dyslexia Association is a charity which offers advice and support to families with a child or young person with dyslexia and/or dyscalculia.

Family Fund provide grants for families raising disabled or seriously ill children and young people, to help ease additional pressures and improve quality of life. The funding can be used to purchase a wide range of items, such as washing machines, sensory toys, family breaks, bedding, furniture, outdoor play equipment or computers.

Hft Family Carer Support Service (FCSS) is a free information and support service for family carers with an autistic relative or a relative with a learning disability. To access their service, the family carers' relative must be aged 16 years or older and living in England.

IPSEA (Independent Provider of Special Education Advice) offer free and independent legally based information, advice and support to help get the right education for children and young people with special educational needs.

Living Made Easy provide impartial advice and guidance on a range of aids and solutions, which can support independent living.

National Autistic Society provide advice and guidance about autism and the challenges autistic people and their families face.

National Deaf Children's Society offer a range of services, information and support for deaf children, young people and their families.

National Network of Parent Carer Forums is an independent national voice of parent carer forums. They aim to deliver better outcomes for families living with SEND by creating a culture of participation and co-production across the education, health, social care and voluntary sectors.

Scope is a disability equality charity, which provide practical information and emotional support, when it's most needed, alongside campaigning for a fairer society.

Sense offer personalised information, advice and support, including holidays and short breaks, for anyone living with complex disabilities or deaf-blindness.

SOS!SEN offer a free, friendly, independent and confidential telephone helpline for parents looking for information and advice on special educational needs and disability.

Special Needs Jungle provide parent-led information, resources and informed opinion about children and young people with special educational needs.

Tourette's Action is a charity offering support, advice and resources about Tourette's syndrome.

SEN Assessment Team contact details

Contact us for all enquiries prior to an EHC plan, including top-up funding. Requests for assessment and finalising the first EHCP is completed by this team. If a child or young person with an EHCP moves into Herefordshire, this will also be dealt with by the assessment team.

Address: SEN Assessment Team, Herefordshire Council, Plough Lane, Hereford HR4 0LE

Telephone: 01432 383679

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SEN Review Team contact details

Contact us for all enquiries relating to a child or young person with an existing EHC plan. This includes all annual review queries, phase transfers and ceasing plans.

Telephone: 01432 383331

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EHCP Assistant Team contact details

The EHCP Assistants monitor and track processes to ensure information is received and logged accurately. They also send out requests for information and process funding changes. Families can contact the EHCP Assistant Team with general enquiries about EHCP processes.

Telephone: 01432 383196

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